Buzz--my doctor has actually prescribed, among the meds, supplements of omega-3 fish oil (or consumption of a lot of fish) and is on board with me about the Ginko Biloba supplement.
Diet and sleep are important.
But when you get right down to it, food is a drug.
It's just not sometimes *enough* of a drug.
And I agree with you---*competent* psychiatrists take side effects that are severe health and wellbeing problems---like weight gain or ovarian problems---very seriously. *Competent* psychiatrists watch patients very closely for the beginnings of emergence of side effects. Most patients who experience bad side effects on one drug do not experience bad side effects on another drug. This is why finding the right medication, medication combination, or dosage to stabilize each patient is a time-consuming process as the doctor begins with the most likely safe and effective drug, gets it up to the therapeutic dose, and monitors to see how the patient does. Then, if the patient has problems or doesn't have adequate relief from symptoms, goes on to the next most likely drug, and so on and so forth until that particular patient is stable and is *NOT* suffering horrible side effects.
Anti-medication people post the side effect profiles as if every patient is going to get them, or as if the side effects come out of nowhere full-force and the patient suffers irreparable harm overnight.
In truth, some side effects are more common than others, and if the doc and the patient and the patient's family are watching, they can virtually always catch the side effect when it's just starting and before permanent damage is done. Then they switch to another drug and watch it for its side effects. Since each patient has good and bad reactions to different drugs, the psychiatrist almost always finds a medication or combination the patient can tolerate and be stable on without horrible side effects.
In truth, following the process *competently*, almost no patients are permanently damaged by drug side effects unless the alternatives are too horrible to contemplate.
Yes, it's also true that you have to pay attention and insist to get a competent doc, you have to ask questions about side effects, you have to pay attention and work with the doctor to make sure impending bad side effects are noticed early and you get the hell off *that* drug and onto a different one.
It is true that you have to be willing to drop a specific pdoc like a hot rock if he/she won't listen to you or communicate with you about drug side effect profiles or won't spend enough time with you to notice if something starts to go wrong.
But the rewards of stability are well worth the diligence it takes to get good results through the process.
It is *also* true that there are a minority of patients whose illness is not responsive to any of the medications we have now. *Some* of those patients get substantial improvements from a short course of shock therapy. It's *rarely* used, but if you have drug-resistant mental illness, sometimes even knowing the risks, it's worth it to a patient to get the potential for improvement in their disorder.
It is true that some people's illness is so resistant to the drugs we have now that they end up on no drugs because there are none that work for them without horrible side effects. Those patients are in the minority, but it does happen.
It is true that some people get *some* improvement from drugs but not totally stabilized. My cousin is on total social security disability with her bipolar disorder, and with the best the doctors and medicines can do, she still sleeps on the couch with the TV on every night to drown out the voices. And when she feels like she's getting dangerous, she goes and checks herself into the mental hospital, and they call her mother, and when she's stable enough again to go home, they send her home. That's the nature of the illness--the symptoms come and go.
The current selection of drugs, the current process for finding the right drugs for each patient---it's not perfect and it's not the Holy Grail. And it's not a cure.
That's why they're always looking for new and better meds with fewer or easier side effects.
That's why people who are mentally ill or have close family who are mentally ill keep a close watch on the genetics research, and on the research to repair brain damage or neural damage. We never give up hoping that someday they'll find a cure. It will probably be a combination of some drug or other with gene therapy. The drug therapy to repair the damage, the gene therapy to keep the disorder from getting triggered again.
We keep hoping they'll identify the triggers so that we can work harder at protecting our children from encountering whatever triggers it and coming down with it in the first place.
We keep hoping they'll keep identifying more of the things that worsen the course of the illness, or ameliorate it, so that we can adjust our lifestyles to have less severe problems.
We pay attention to the whole spectrum of research and data coming in---which is why I take fish oil and Ginko Biloba for my executive function problems, as well as my doc switching me to Lamictal because it helps with those problems, too.
We pay attention to the research that says that marijuana use worsens the course of bipolar disorder. It's not "reefer madness" hysteria---it's just recently been identifies as *one* of the possible triggers that *may* worsen the course of the disease. The research is, by my lights, preliminary and I will be watching closely to see what follow-up research shows, but as one possible trigger, we pay close attention.
SSRI's, for *some* patients, for *some* kinds of bipolar disorder, worsen the course of the disease, they think. They think Ritalin worsens the course of the disease. It (tentatively) looks like anything that triggers mania has a long term negative effect on the course of the disease. It (tentatively) looks like mania is not just behavioral, it's a symptom that indicates that the brain is, right then, undergoing actual damage.
We mentally ill folks and relatives of mentally ill folks pay attention to every therapy, surgery, drug, supplement, trigger, risk factor, gene study----everything about the illnesses that come down the pike.
Because every day we desperately hope for better treatments or a cure.
It just hurts when I read (and from what I can tell, it hurts other mentally ill people and family members when they read) people passing around misinformation or misinformed hysteria about the various treatments, the risks and benefits, and the *reputable*, *well-designed* research coming down the pike.
We all work so hard at staying informed about the treatments and their risks and benefits, and nobody knows that the present knowledge about the disease and the present treatments have risks, have drawbacks, and don't help everyone.
If you could read the CABF homeschool list and see what some of these parents have to cope with every single day, and how *desperately* hard they try to get their children an education, and keep them stable, and keep them safe, and keep them from running afoul of the law, and keep them out of the hospital, and keep them out of an RTC----if you could see all that, every day, day in and day out, it would break your heart.
It practically breaks mine, and I and my daughter are so lucky to be good medication responders, high function, with limited side effects. We're not normal by any means, but we're very, very lucky.
It's very hard not to take misinformation and hysteria personally, because anybody---parent or patient or caretaking relative---that runs across the misinformation or hysteria and buys into it can suffer horrible, horrible needless pain and damage and grief. I *see* the pain and damage and grief of other parents with sick kids and their heartbreak while doing the very best that can be done with the current state of medicine---I see it every single day.
And every parent or patient or caretaker that buys into misinformation---I can imagine their pain more clearly than anyone who doesn't have to live with this disorder, and the other people who are in the same boat, day in and day out.
It's hard enough for us without paranoid moonbats making it even harder.
It sucks. It sucks rocks, it sucks out loud, it bites---It sucks to the maximum possible level of suckosity.
Maybe by the time my daughter is grown they'll have a real cure. Cured people don't have to worry anymore about being damaged by falling for misinformation. I hope for a real cure and normal lives for us every day.
Timoclea
If you think yourself too wise to involve
yourself in government, you will be governed
by those too foolish to govern.
--Plato