you know, i'm not any kind of an expert, but there are regulations regarding human subjects research. it steams me that Schwartz and the other Nazi-Straight doctors used us for their research. i don't see how any child prisoner of Straight could give free assent to participating. it is possible there are loopholes that made the research "legal" or whatever, but i think it is valuable to consider this subject.
f Federal Regulations]
[Title 45, Volume 1, Parts 1 to 199]
[Revised as of October 1, 1999]
From the U.S. Government Printing Office via GPO Access
[CITE: 45CFR46.409]
[Page 125]
TITLE 45--PUBLIC WELFARE
AND HUMAN SERVICES
PART 46--PROTECTION OF HUMAN SUBJECTS--Table of Contents
Subpart D--Additional Protections for Children Involved as Subjects in
Research
Sec. 46.409 Wards.
(a) Children who are wards of the state or any other agency,
institution, or entity can be included in research approved under
Sec. 46.406 or Sec. 46.407 only if such research is:
(1) Related to their status as wards; or
(2) Conducted in schools, camps, hospitals, institutions, or similar
settings in which the majority of children involved as subjects are not
wards.
(b) If the research is approved under paragraph (a) of this section,
the IRB shall require appointment of an advocate for each child who is a
ward, in addition to any other individual acting on behalf of the child
as guardian or in loco parentis. One individual may serve as advocate
for more than one child. The advocate shall be an individual who has the
background and experience to act in, and agrees to act in, the best
interests of the child for the duration of the child's participation in
the research and who is not associated in any way (except in the role as
advocate or member of the IRB) with the research, the investigator(s),
or the guardian organization.
