Author Topic: Shocking Stupidity: Boston Globe Ignores Research  (Read 1123 times)

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Offline Ursus

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Shocking Stupidity: Boston Globe Ignores Research
« on: May 02, 2010, 10:06:30 AM »
This piece from the Huffington Post got posted or linked to a little while ago, but then got deleted. So here it is again:

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Maia Szalavitz
neuroscience journalist
Posted: March 9, 2010 05:43 PM


Shocking Stupidity: Boston Globe Ignores Research to Support Dangerous Autism Program

The Boston Globe ran an op-ed today that perfectly characterizes a key failure of American journalism: that is, it reports on a medical question that can be answered by scientific research, but fails to even mention that such data exists or should exist.

The piece, headlined "Shocking Truths," claims that the arguments of critics of the Judge Rotenberg Center -- who oppose its inhumane electric skin-shock treatment of people with developmental disabilities -- are "too pat." The Department of Justice is currently investigating the school for human rights violations, after complaints from disability rights advocates.

Those concerns are groundless, author Lawrence Harmon argues. His proof? A five hour visit he made to the school in which he saw "nothing inhumane." Sure, he concedes, abuses have been found in the past -- but that's no reason to pay attention to the opposition of no fewer than 31 major disability advocacy groups.

As shallow as this reasoning is, it hides an even more profound failure of critical thinking. Harmon accepts at face value the claims of the school and of parents of students who support it that skin shock treatment "works" and is superior to what he calls "stupefying" doses of medication sometimes used by other programs.

But this is an empirical question -- and in decades of advocating a treatment its victims compare to "an attack by a swarm of wasps" -- the Rotenberg Center has yet to produce a single randomized controlled trial showing that its approach is effective -- let alone superior to others.

Rhetorically, Harmon asks, "Why do no practitioners other than Israel [Rotenberg's director] adopt this approach? Do they view skin shocks as cruel or do they fear the outcry of disability advocates and inevitable probes? Is skin shock, in some cases, a more humane treatment than heavy drugs and mechanical restraints?" He has a psychiatrist answer that he "doesn't know."

The disability rights groups know, however: they know that there is research from randomized controlled trials that supports other, more humane approaches. They know that there is none to support Rotenberg -- and they also know that research increasingly shows that sensory oversensitivity is a huge part of the autistic spectrum disorders often treated at the center. Given this, use of painful stimuli could be even more harmful to autistic kids than to others.

Using science to make medical decisions is not making a pat or black and white argument -- it is the same method that the FDA uses to clear drugs for marketing. If they are not first proven safe and effective, medications aren't allowed to be sold to the public. That standard is good enough for medications -- why shouldn't we use it for other treatments that can potentially do harm?

Why should we have lower standards for a skin-shock treatment used on our most vulnerable children? Parents' anecdotes and those of clinicians who profit from skin shock treatment aren't enough: you can find plenty of these in support of harmful, quackish cancer treatments, too. The fact that Harmon thinks that these anecdotes prove anything just shows how low his standards of evidence really are.

The Justice Department is right to have answered the disability rights groups with an investigation. It should conclude that the Rotenberg Center is conducting an unauthorized and inhumane experiment -- and refuse to allow any further use of its approach until it can prove that it is more effective than more humane alternatives. Given that the center hasn't been able to do that in its decades of existence, the program should be shuttered.


Copyright © 2010 HuffingtonPost.com, Inc.
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Offline Whooter

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Re: Shocking Stupidity: Boston Globe Ignores Research
« Reply #1 on: May 02, 2010, 02:05:59 PM »
Boston Globe Article

Yet somehow the arguments of the center’s detractors seem too pat. A recent five-hour visit to the school revealed nothing inhumane. Granted it’s a small window of time and the 214 students arrive each day from 32 scattered group homes. But the behaviors of many of the students, who range in age from 7 to 50, can be so unpredictable that it would be almost impossible to create a Potemkin village to dupe outsiders.

The Rotenberg Center is a highly structured behavior modification program that requires students to earn nearly every privilege - even a chance to relax with each other - by staying on task and not acting up. The road to its door is long. Parents, as a rule, don’t even consider placement until their children have been expelled from several other special needs schools.

On arrival, no one slaps electrodes on the students or fits them for the backpacks that contain the shock devices. Court-approved treatment plans require the school to use a positive rewards system, often for several months, before skin shocks can be administered via the transmitters that hang from the belts of some staffers. Supervisors in two video monitor rooms watch every classroom, group home, and common area through live camera feeds.
No shocks on this tour, it turns out, though there was one peck on the cheek exchanged by a student and a popular staffer. But it’s not always so placid. Some years back, a student who still attends the school bit off the better part of a staffer’s nose. In the last three months, the 500-member direct care staff has suffered 100 injuries. Yet no one gets expelled. But the students save the worst for themselves - eye gouging, genital mutilation, teeth removal, and ferocious head banging..........




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Offline Antigen

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Re: Shocking Stupidity: Boston Globe Ignores Research
« Reply #2 on: May 02, 2010, 02:35:07 PM »
Quote from: "Whooter"
Some years back, a student who still attends the school bit off the better part of a staffer’s nose. In the last three months, the 500-member direct care staff has suffered 100 injuries. Yet no one gets expelled. But the students save the worst for themselves - eye gouging, genital mutilation, teeth removal, and ferocious head banging..........

And you take this as evidence of efficacy?
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Offline Whooter

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Re: Shocking Stupidity: Boston Globe Ignores Research
« Reply #3 on: May 02, 2010, 03:05:27 PM »
Quote from: "Antigen"
Quote from: "Whooter"
Some years back, a student who still attends the school bit off the better part of a staffer’s nose. In the last three months, the 500-member direct care staff has suffered 100 injuries. Yet no one gets expelled. But the students save the worst for themselves - eye gouging, genital mutilation, teeth removal, and ferocious head banging..........

And you take this as evidence of efficacy?

No I don’t, but I also don’t think anyone should toss the therapy out the window and shutter the place because people don’t understand it and therefore are afraid of it.

I don’t advocate this therapy because I don’t know much about it.  But people should keep an open mind.  Unless we walk in the parents shoes and have seen their children restrained day in and day out or so highly medicated that their quality of life is near zero then we cannot begin to judge them.  From what I have read Shock Therapy is the last resort for these people.

Questions we should ask ourselves:
Should parents be concerned with their children’s quality of life? Is shock therapy more humane than heavy drugs or mechanical restraints?  Should parents do nothing and just allow their child to harm themselves or someone else?  If they do nothing should the parents be put in jail if their child harms another person?  Are we acting compassionately if we block children from receiving this type of therapy?



...
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Offline Ursus

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Shocking truths by Lawrence Harmon (Boston Globe op-ed)
« Reply #4 on: May 02, 2010, 03:17:51 PM »
Here's the op-ed from the Boston Globe which is inspiring all the controversy:

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The Boston Globe
Shocking truths
The Rotenberg Center's methods are undoubtedly unorthodox. But they work.
By Lawrence Harmon
Globe Columnist / March 9, 2010


THE JUDGE Rotenberg Center in Canton, which stands alone in its use of painful skin shocks to eradicate self-mutilation and sudden assault, is a storehouse of ethical and medical dilemmas. But it's no shock - and no shame - that the parents of some autistic and mentally retarded children embrace this controversial school.

The Rotenberg Center has been investigated numerous times by state agencies and reporters. Serious irregularities have been uncovered over the years, most recently in 2007 when a child was ordered shocked 77 times in three hours as a result of an elaborate prank orchestrated by a former student. Just last month, the US Justice Department agreed to investigate the center based on charges of "inhumane practices" - largely related to shocks for seemingly minor infractions - brought by 31 disability advocacy groups.

Yet somehow the arguments of the center's detractors seem too pat. A recent five-hour visit to the school revealed nothing inhumane. Granted it's a small window of time and the 214 students arrive each day from 32 scattered group homes. But the behaviors of many of the students, who range in age from 7 to 50, can be so unpredictable that it would be almost impossible to create a Potemkin village to dupe outsiders.

The Rotenberg Center is a highly structured behavior modification program that requires students to earn nearly every privilege - even a chance to relax with each other - by staying on task and not acting up. The road to its door is long. Parents, as a rule, don't even consider placement until their children have been expelled from several other special needs schools.

On arrival, no one slaps electrodes on the students or fits them for the backpacks that contain the shock devices. Court-approved treatment plans require the school to use a positive rewards system, often for several months, before skin shocks can be administered via the transmitters that hang from the belts of some staffers. Supervisors in two video monitor rooms watch every classroom, group home, and common area through live camera feeds.

No shocks on this tour, it turns out, though there was one peck on the cheek exchanged by a student and a popular staffer. But it's not always so placid. Some years back, a student who still attends the school bit off the better part of a staffer's nose. In the last three months, the 500-member direct care staff has suffered 100 injuries. Yet no one gets expelled. But the students save the worst for themselves - eye gouging, genital mutilation, teeth removal, and ferocious head banging.

Psychologist Matthew Israel, the school's founder and director, says he can eradicate the most extreme forms of aggression and self-mutilation in a matter of days or weeks by use of skin shocks, each one lasting two seconds. Students with the most severe behavior problems can receive numerous skin shocks. But the shock treatment usually drops to just once a week, according to Israel. He compares the pain to a bee sting. Others suggest an attack by a swarm of wasps. Regardless, the use of these "aversives" seems to work on the roughly 100 students whose treatment programs have been approved by parents and a probate judge.

Students who needed stupefying doses of psychotropic drugs or mechanical restraints in their former schools routinely dine drug-free in the Rotenberg cafeteria, perform piece work for a local company, and work at classroom computers. These are common activities in special needs schools. But Rotenberg is populated by the students other programs tossed out.

In one classroom, a teenager outfitted in a helmet and chest protector sits restrained in a chair. He's a new arrival from New York, where education officials recently issued a ban on skin shock treatment for any of their publicly-funded students. Israel believes he could get the self-destructive 16-year-old into decent shape after just a few weeks of skin shocks. The boy's parents and six others in similar straits, including Charles Bryant of upstate New York, have gone to federal court to lift the ban.

"People outside don't understand," said Bryant. "They're blessed with normal children."

Israel insists no one should use aversive treatments unless they also offer a powerful rewards program for good behavior. At Rotenberg, the payoff is a brightly-lit causeway designed with Wizard of Oz-themed animatronic characters, a sparkling gift store, a movie theater with plush seats, arcade, and internet cafe. Whimsical gizmos abound. It's bewildering after passing from the austere classrooms. But the students appear to get a big kick out of it and work hard for a chance to spend their time, money, and good behavior tokens in "Emerald City." The unorthodox Israel seems more animated, too. It's pretty obvious that he fancies himself the wizard behind the curtain.

Why do no practitioners other than Israel adopt this approach? Do they view skin shocks as cruel or do they fear the outcry of disability advocates and inevitable probes? Is skin shock, in some cases, a more humane treatment than heavy drugs and mechanical restraints?

"I don't know," said Dr. Michael Grodin, a psychiatrist and director of medical ethics at Boston University School of Public Health. But Grodin said he would be wary of anyone who sees this complex issue purely in terms of black or white. The best one can do, he said, is wrestle with the complexities by asking "who benefits, under what circumstances, toward what end, and at what cost."

No one wrestles harder with those questions than parents. And some have decided, with court approval, that skin shocks are the best way to restore their broken children. It's not an act of compassion to stand in their way.

Lawrence Harmon can be reached at [email protected].


© Copyright 2010 Globe Newspaper Company.
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Offline DannyB II

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Re: Shocking Stupidity: Boston Globe Ignores Research
« Reply #5 on: May 02, 2010, 06:31:59 PM »
:shamrock:  :shamrock:

Very shocking and sobering, to know that the decisions parents have to make for a child so maladjusted to life is sad beyond believe. My only hope that these children are not used and abused for some corporate gain, though some how I think they are.
Ursus, Whooter and Antigen, I can only hope the debating is held at a low level because there is little to quibble about these kids need all the empathy one could muster.

Danny
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Offline Anne Bonney

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Re: Shocking Stupidity: Boston Globe Ignores Research
« Reply #6 on: May 04, 2010, 10:29:35 PM »
http://www.prisonplanet.com/us-school-f ... hocks.html

  US school for disabled forces students to wear packs that deliver massive electric shocks

Diana Sweet
Raw Story
Tuesday, May 4, 2010

Mental Disability Rights International (MDRI)  has filed a report and urgent appeal with the United Nations Special Rapporteur on Torture alleging that the Judge Rotenberg Center for the disabled, located in Massachusetts, violates the UN Convention against Torture.

The rights group submitted their report this week, titled “Torture not Treatment: Electric Shock and Long-Term Restraint in the United States on Children and Adults with Disabilities at the Judge Rotenberg Center,” after an in-depth investigation revealed use of restraint boards, isolation, food deprivation and electric shocks in efforts to control the behaviors of its disabled and emotionally troubled students.

Findings in the MDRI report include the center’s practice of subjecting children to electric shocks on the legs, arms, soles of feet and torso — in many cases for years — as well as some for more than a decade. Electronic shocks are administered by remote-controlled packs attached to a child’s back called a Graduated Electronic Decelerators (GEI).

The disabilities group notes that stun guns typically deliver three to four milliamps per shock. GEI packs, meanwhile, shock students with 45 milliamps — more than ten times the amperage of a typical stun gun.

A former employee of  the center told an investigator, “When you start working there, they show you this video which says the shock is ‘like a bee sting’ and that it does not really hurt the kids. One kid, you could smell the flesh burning, he had so many shocks. These kids are under constant fear, 24/7. They sleep with them on, eat with them on. It made me sick and I could not sleep. I prayed to God someone would help these kids.”

Noting that it believes United States law fails to provide needed protections to children and adults with disabilities, MDRI calls for the immediate end to the use of electric shock and long-term restraints as a form of behavior modification or treatment and  a ban on the infliction of severe pain for so-called therapeutic purposes.

“Torture as treatment should be banned and prosecuted under criminal law,” the report states.

The U.S. Department of Justice opened a “routine investigation” of the center in February of this year in response to a September 2009 letter signed by 31 disability organizations claiming that the center violated the Americans with Disabilities Act.

Judge Rotenberg CEO and founder Dr. Matthew L. Israel began his first program in California back in 1977. In 1981, a 14-year old boy died face down, tied to his bed, while living in the California center.  Dr. Israel was not held responsible for the death. After an investigation by the State of California, Israel relocated to Rhode Island, and then to Massachusetts, where his facility still operates today.

Mother Jones magazine published an extensive investigative report on the Rotenberg Center in 2007 titled “School of Shock.” Reporter Jennifer Gonnerman asked, “How many times do you have to zap a child before it’s torture?”
Children at the Judge Rotenberg Center are often shackled, restrained and secluded for months at a time, the report says.  Social isolation, and food deprivation as forms of punishment are common.  Mock and threatened stabbings — to forcibly elicit unacceptable behaviors resulting in electric shock punishments (Labeled as Behavioral Research Lessons or BRLs, by the center) were reported to MDRI as well as state regulatory bodies.

A former student of the center reportedly tells MDRI, “The worst thing ever was the BRLs. They try and make you do a bad behavior and then they punish you. The first time I had a BRL, two guys came in the room and grabbed me – I had no idea what was going on. They held a knife to my throat and I started to scream and I got shocked. I had BRLs three times a week for stuff I didn’t even do. It went on for about six months or more. I was in a constant state of paranoia and fear. I never knew if a door opened if I would get one. It was more stress than I could ever imagine. Horror.”

Behaviors that the center deemed “aggressive,” as well as those considered “minor,” or “non-compliant” — such as raising one’s hand without permission — are all considered punishable by electric shocks, restraints, and other punishments to students.

“One girl who was blind, deaf and non-verbal was moaning and rocking,” a former teacher says in the report. “Her moaning was like a cry. The staff shocked her for moaning. Turned out she had broken a tooth. Another child had an accident in the bathroom and was shocked.”

The rights group investigation found that the Rotenberg center is the only known facility in the United States, “Or perhaps the world,”  that employs the use of electricity, long-term restraints and other punishments to deliberately inflict pain upon its children and then refer to it as “treatment.” The electric shocks alone are cited as having possible long-term effects such as muscle stiffness, impotence, damage to teeth, scarring of the skin, hair loss, Post Traumatic Stress Disorder (PTSD), severe depression, chronic anxiety, memory loss and sleep disturbances.

The MDRI report states that more than any other source for its information, they relied upon information readily obtained from the Judge Rotenberg Center’s own website.

In response to MDRI’s report, the Judge Rotenberg Center said, “There is no credible evidence that for these most severe forms of behavior disorders, there is any pharmacological or psychological treatment that can effectively treat these students or even keep them safe. JRC is the only program willing to address the reality of these children’s disorders and endure the political firestorm in order to save these children and give them an education and a future.”

The complete rebuttal from the center can be read in full at JRC’s website.
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Offline Ursus

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Re: Shocking Stupidity: Boston Globe Ignores Research
« Reply #7 on: May 05, 2010, 10:18:14 AM »
Great article, Anne! Prison Planet sure doesn't take any prisoners!

Quote
Judge Rotenberg CEO and founder Dr. Matthew L. Israel began his first program in California back in 1977. In 1981, a 14-year old boy died face down, tied to his bed, while living in the California center. Dr. Israel was not held responsible for the death. After an investigation by the State of California, Israel relocated to Rhode Island, and then to Massachusetts, where his facility still operates today.
Israel is a master at burying facts from his California days...
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